Update: February 20
By: Patrick Colson, Founder & President
Just over a year ago, my life changed forever when I began dialysis. I didn’t know then that this journey would lead to the birth of Nephro Warriors. Today, I want to pull back the curtain and share the massive progress we’ve made over the last 12 months as we transition from a grassroots idea to a fully-realized advocacy force.
National Advocacy & Strategic Partnerships
Beyond the local level, we have expanded our reach into national leadership. We am proud to serve as a Patient Ambassador with the American Association of Kidney Patients (AAKP), the oldest and largest independent kidney patient organization in the U.S. Furthermore, my wife Cortney and I have officially joined forces as an Advocacy Team with NxStage/Fresenius, specifically championing the education and empowerment of home dialysis patients. These roles allow Nephro Warriors to influence the national conversation while bringing the latest clinical breakthroughs directly back to our community.
Navigating the "Front Lines" (UCI & UCSD)
I have spent this past year as a "student of the system." I am currently navigating the rigorous transplant evaluation processes at both UCI Health and UCSD Health. I am proud to share that I have officially received Clinical Clearance from the UCI Kidney Transplant Committee—a major milestone that proves our "Warrior" approach to health discipline works.
The "Clinical Wall of Authority"
While I am testing the waters at the transplant centers, I have been building a powerhouse of medical intelligence behind the scenes. We have secured formal support and guidance from a network of specialists primarily within the Hoag Hospital System, as well as experts from Memorial Care. This means our programs aren't just based on my experience; they are vetted by the best nephrologists, cardiologists, and vascular surgeons in Southern California. We have the "boots on the ground" experience at the hospitals and the "high-level intelligence" from the clinics.
The Blueprint: Nephro Corps & Battle Buddies
In this first year, we didn’t just talk—we researched. We’ve used this time to finalize the frameworks for our two flagship initiatives:
- Battle Buddies: A caregiver support system—led by Cortney’s expertise—to ensure patients have the post-op stability required to stay "Active" on the transplant list.
- Nephro Corps: Specifically designed to help veterans bridge the gap between VA benefits and community transplant care.
What’s Next: Fiscal Sponsorship & Growth
We are currently in the process of securing Model A Fiscal Sponsorship through organizations like OneOC. This will give us the institutional backbone (501c3 status, legal oversight, and professional accounting) to take our mission national. We are also in the "Coalition Building" phase, reaching out to established leaders like the Enlisted Kidney Foundation to ensure we are working as a unified force for our veterans.
A Year of Wisdom
I’ve only been on this road for a year, but I’ve spent every hour of that year reaching out, gathering feedback from nurses, social workers, and technicians, and refining our strategy. We are grassroots but we are hungry, we want a seat at the table and most importantly, we are ready to bring a voice to the conversation.
Thank you for standing with us. The mission continues.
— Patrick Colson